UPDATED: Ethical Research with Online/Pervasive Data

Researchers around the world regularly use online data about people (or “pervasive data”), which can come from web-based monitoring tools, education technology, Internet of Things devices, wearables, connected cars, AI systems, and more. This research is important for understanding topics such as social media habits, mental health, and human migration. However, it also poses new ethical challenges, since the research often includes data from many individuals, may not involve traditional notions of consent, and can have large-scale impacts on society. Much of this research is outside current U.S. governmental ethics guidelines. NTIA, in conjunction with other government agencies, is considering the development of non-binding ethical guidelines for researchers working with pervasive data. These guidelines would not supersede any existing laws or regulations.

This listening session aims to gather feedback from the public, researchers, civil society, and industry about this important topic. Each participant will have up to three minutes to share their comments with government representatives. The session will be recorded and posted publicly online. The results of the listening session, along with NTIA’s Request for Comments on the same topic, will help NTIA make decisions related to drafting non-binding ethical guidelines for researchers. Listening session participants and other interested parties are also encouraged to consider submitting a comment through the Request for Comments